MARC details
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04983nmi a22003617a 4500 |
| 005 - DATE AND TIME OF LATEST TRANSACTION |
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20190312163043.0 |
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| 007 - PHYSICAL DESCRIPTION FIXED FIELD--GENERAL INFORMATION |
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180124d2018 sp ||||| |||| 00| 0 spa d |
| 040 ## - CATALOGING SOURCE |
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| Transcribing agency |
Salus Infirmorum |
| 100 1# - MAIN ENTRY--PERSONAL NAME |
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| Personal name |
Alonso Ibáñez, Paula Cristina |
| 9 (RLIN) |
3007 |
| 245 10 - TITLE STATEMENT |
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| Title |
Historia de vida de un niño diagnosticado de enfermedad de<br/>perthes / |
| Statement of responsibility, etc. |
Paula Cristina Alonso Ibáñez ; tutor: d/dª. Cristina Díaz Pérez |
| Medium |
[Trabajo Fin de Grado] |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. |
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| Date of publication, distribution, etc. |
2018 |
| 300 ## - PHYSICAL DESCRIPTION |
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| Extent |
1 archivo (pdf.) ; |
| Dimensions |
552 kb |
| 500 ## - GENERAL NOTE |
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| General note |
Trabajo fin de grado. Defendido en junio de 2018 |
| 520 3# - SUMMARY, ETC. |
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| Summary, etc. |
La enfermedad de Perthes es una enfermedad rara, que se caracteriza por una<br/>necrosis de la epífisis femoral en la época de crecimiento, evolucionando por etapas<br/>y diferentes grados de intensidad. Se trata de una enfermedad que necesita de<br/>tratamiento inmediato, la única solución es la osteotomía. En este trabajo la<br/>fisioterapia ha sido de vital importancia para la recuperación tras la cirugía.<br/>Objetivos: El presente estudio pretende conseguir narrar la vivencia personal de una<br/>madre con un hijo al que se le ha diagnosticado una enfermedad “rara, así como dar<br/>a conocer la gran importancia del cuidador familiar intentando captar el testimonio y<br/>visión con la que afrontar la enfermedad.<br/>Metodología: El presente trabajo es un relato bibliográfico. Un tipo de estudio<br/>cualitativo de carácter descriptivo, desarrollado a través de tres entrevistas en<br/>profundidad en las que se abordó la vivencia de una enfermedad en primera<br/>persona, desde el inicio del diagnóstico hasta el presente.<br/>Resultados: La protagonista relata su experiencia desde el punto de vista de madre<br/>y de cuidadora principal, su dedicación absoluta y las ganas por preservar la vida de<br/>su hijo, tratando de vivir esta experiencia desde la Fe en Dios. Esta historia lleva a<br/>conocer a una madre coraje, capaz de encontrar un sentido a todo el sufrimiento,<br/>con capacidad de afrontamiento para trasladar alegría y serenidad a su núcleo<br/>familiar.<br/>Conclusiones: La participante describe con intensidad la vivencia de la enfermedad<br/>en contraposición a su vida actual, revelando un cúmulo de sentimientos ante la<br/>incertidumbre del proceso de enfermedad y la necesidad de dedicar su tiempo a ser<br/>cuidador principal. |
| 520 8# - SUMMARY, ETC. |
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| Summary, etc. |
Perthes disease is a rare disease, characterized by a necrosis of the femoral<br/>epiphysis at the time of growth evolving by stages and different degrees of intensity.<br/>It is a disease that needs immediate treatment, the only solution is osteotomy. In this<br/>work, physiotherapy has been of vital importance for recovery after surgery. The<br/>present work is a bibliographic account of the personal experience of a mother who<br/>has lived the diagnosis of a rare disease in her son. Nieves tells us her experience<br/>from the point of view of mother and primary caregiver, her absolute dedication and<br/>desire to preserve the life of her son, trying to live this experience from Faith in God.<br/>This story will lead us to meet a courageous mother, capable of finding a meaning to<br/>all suffering and bringing up a family always with the joy and serenity that<br/>characterizes it.<br/>Objectives: The present study aims to narrate the personal experience of a mother<br/>with a child who has been diagnosed with a rare disease, as well as publicize the<br/>great importance of the family caregiver trying to capture the testimony and vision<br/>with which to face the disease.<br/>Methodology: The present work is a bibliographical report. A type of qualitative study<br/>of a descriptive nature, developed through three in-depth interviews in which the<br/>experience of a disease in the first person was addressed, from the beginning of the<br/>diagnosis to the present.<br/>Results: The protagonist recounts her experience from the point of view of mother<br/>and primary caregiver, her absolute dedication and the desire to preserve the life of<br/>her son, trying to live this experience from Faith in God. This story leads us to know a<br/>courageous mother, capable of finding a meaning to all suffering, with coping skills to<br/>transfer joy and serenity to her family nucleus.<br/>Conclusions: The participant describes with intensity the experience of the illness as<br/>opposed to her current life, revealing a bunch of feelings in the face of the uncertainty<br/>of the disease process and the need to devote her time to being the main caregiver |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Enfermedad Rara |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Enfermedad de Perthes |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Cadera |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Rehabilitación |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Cuidador |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Fe |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Rare Disease |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Perthes Disease |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Hip |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Rehabilitation |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Caregiver |
| 653 ## - INDEX TERM--UNCONTROLLED |
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| Uncontrolled term |
Faith |
| 700 1# - ADDED ENTRY--PERSONAL NAME |
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| Personal name |
Díaz Pérez, Cristina |
| 9 (RLIN) |
3008 |
| 710 2# - ADDED ENTRY--CORPORATE NAME |
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| Corporate name or jurisdiction name as entry element |
Universidad Pontificia de Salamanca. |
| Subordinate unit |
Facultad de Enfermería y Fisioterapia Salus Infirmorum. |
| -- |
Grado en Enfermería. |
| 9 (RLIN) |
489 |
| 942 ## - ADDED ENTRY ELEMENTS (KOHA) |
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| Source of classification or shelving scheme |
Universal Decimal Classification |
| Koha item type |
TFG/TFM |
